Skip to main content

Home for Christmas?

[caption id="attachment_3033" align="alignright" width="210"]Raiden pic 1 Raiden. Pre-diagnosis[/caption]

Raiden's Battle
Written by JAK guest mom blogger from
Turtle WI, Sara Smith

About 600 children each year are diagnosed with Neuroblastoma, the most common solid tumor cancer in children. Nearly 70% of those children will be at a stage four at time of diagnosis. This year my three year old nephew Raiden, from Salem, was one of them.

 

Neuroblastoma is a highly misdiagnosed cancer in the early days. As with most children in his shoes Raiden was having tummy pain and eventually swelling in his abdomen and limbs making it difficult for him to walk. It took months of emergency room visits and being told it was just constipation for them to be directed up to Children’s Hospital in Milwaukee and get a correct diagnosis. His doctors say they only see 4 cases of this a year and are hopeful for a good outcome, even though one child with neuroblastoma dies every 16 hours. Read more...

 

[caption id="attachment_3034" align="alignleft" width="160"]Raiden pic 2 Raiden with port well. Abdomen swollen post drainage of fluids.[/caption]

Raiden is also a big brother. Odin is not even a year and a half old yet and his young family has fallen under a great financial burden. My brother is working here and there when they are away from the hospital and things are well at home, and the boys’ mom has quit both of her jobs. Raiden has gone through several rounds of chemo since his diagnosis in October and shortly after Christmas he will be undergoing a huge 12-16 hour surgery to remove as much of the mass as possible. After the surgery there is radiation, stem cell and bone marrow infusions all as further care. This will mean even more time out of work.

 

[caption id="attachment_3035" align="alignleft" width="161"]Raiden feeling “better” post chemo rounds. Raiden feeling “better” post chemo rounds.[/caption]

In light of these massive costs and deficits the family is experiencing we are planning a benefit for March 7th at the VFW in Kenosha, WI. We will have food, live music, raffles and silent auctions all to help support the family. We are seeking donations if anyone has it in their heart to give to our cause, either an item or service from a business you own or if there is a gift you would like to buy for us to use for the raffles or silent auctions all the efforts are much appreciated!  If you would like to buy tickets to come out and show your love that is also greatly needed.

 

[caption id="attachment_3038" align="alignleft" width="162"]Raiden being silly while hanging out at the hospital.  Raiden being silly while hanging out at the hospital.[/caption]

You can follow more about Raidens battle on his facebook page www.facebook.com/raidensbattle. For tickets, donation information or questions you can contact Sara Smith at sarasmith0704@gmail.com or (262) 496-3577. You can also go to any US Bank and make a donation for the family by making a deposit into the Raiden Kautenburg benefit account.

 

Thank you all for your time and any thoughts/ prayers you can offer our family!

 

Sara Smith, Raiden's aunt.

 

About Sara: Formerly from Kenosha County, Sara is a married, stay-at-home, homeschooling mother of three children.

updatesbenefitflyer-page-0 (2)

Comments

Popular posts from this blog

AWESOME Dad

Well, most are! I know your kid's daddy might not be tops in your book, yet, in the eyes of your child, he probably is. I am so grateful that when my husband and I mutually took the risk to vow to spend our lives together, then had/have children, (while not always perfect) he ended up being quite the awesome dad. Assist your child in sharing his/her celebration of dad. (Um, I am sure you know, Father's Day is next Sunday, June 17th).  Here's a great way to do that, pocket $100 gift card for your kiddo, and knock out that Father's Day gift!  Here's how... Read More... For the third year in a row, Just Add Kids has partnered with Educators Credit Union  to bring you, your kids and their daddy a fun contest in celebration of Father’s Day.  This year, RelyLocal Racine is also partnering with JAK and providing a plethora of gift cards perfect for dad. So, how to participate? Kids color a portrait of their dad, grandaddy, or other fatherly figure (portrait frame and e

June is the New Spring

April Wrap Up: Wrapped in Love                           In recognition of April being Autism Awareness month, Just Add Kids welcomes Colleen Nagle, a Burlington mom, as JAK's guest blogger. Autism is easy to misunderstand, misinterpret and mislead.  My son is the master of disguise and the best way to understand our kids is to assume nothing.  That is, assume only that they are kids, children, teens, silly, loving, intelligent and, well, simply put, no different than any other kid. Everything I have been told about Autism is wrong. Everything I know about Autism I have learned from my son.  My son with Autism.  He loves me just like his typical siblings love me, he cries when he misses me and he smiles when we are together again. Read more... He cannot speak.  He has never been able to express his favorite color or cartoon or game.  My heart longs to know him, to know the little everyday things: to know that he has favorites; to know that he likes the food I serve him; to know if

Wishful Thinking

Putting Thoughts Into (60 Second) Action                Just Add Kids welcomes Mollie Bartelt, a Caledonia mom, as JAK's guest blogger Do you want to make a difference in your life this summer? Or make a difference for a child who has a life threatening illness? Or win $1000 in a fun challenge? Game on! My story began six months ago, when my happy, healthy nine year old daughter came in from outside playing in the snow feeling dizzy. We became alarmed when she couldn’t stand up after resting a bit...her legs were wobbly and criss-crossing and she appeared to have no balance. A few short hours later in the emergency room, the situation looked worse as she was starting to slur her speech and not even be able to get words out correctly... and she couldn’t get her hands to work to put a snack in her mouth. Read more... The hospital ER staff then sent us up to Children’s Hospital where Hannah stayed for nearly a week, undergoing tests and having therapy. While all the tests were negativ